Well we had another tc yesterday.
I took the kids on a walk to my sister in laws house, about a mile away, to show off their 2nd Halloween costumes. We all chatted outside for awhile, the kids ran, and apparently had ripped into the candy already. I joked with my niece "hey quit giving seizure boy all that sugar that's the last thing he needs." We make plans to walk back home, get our pumpkins and return for dinner and a pumpkin carving party. We walk to the end of the block and Addison shouts over the tunes playing on my IPod "Mom, look at Jake!" I say "yes, Addi, I know," as she always informs of any strange look that Jake may give in an effort to warn me of a seizure. Thankfully, I did take a closer look.
Jake was having a full seizure and was unresponsive. I quickly snatch him out of the double jogger and put him in the grass, I start taking off shoes, and clothes. I actually don't know why I am stripping the kid and why I moved him to the grass. At this moment a caring teenager on a bike was stopping and trying to help. He kept insisting to let him do something. What? I am unsure. I moved him along, as if to say "move along folks, nothing to see here." I am still very impressed with this young man. To see a stranger on the street and her son in full convulsions and offer to help was very admirable to me.
Apparently somewhere during all this I called my sister in law, and about the time the seizure was dissipating, The Alvarez van pulls up and kids and my sister in law start pouring out. She's handing me diastat, that luckily we don't need , as the seizure stopped somewhere in between the 2-3 minute mark. I don't know if I have ever been so thankful to get a ride home.
Tomorrow's Halloween and it could bring the scariest one yet.
I am so scared as to what the excitement of the day and evening may bring to a boy who suffers from seizures. The day will be filled with much over excitement causing:
too much sugar= trigger
flashing lights or strobe lights= trigger
and all at the same time!
I am praying that we will have a very UN eventful seizure day and the kids can enjoy it the way all kids should, sans stress, anxiety, and seizures.
We start the day bright and early with a Halloween party at their school. They will be wearing costumes number 2 to the school; Princess Jasmine and Peter Pan. Then will head out early for trick-or-treating, as a cheerleader and football player, in an attempt to avoid at least some of the over stimulation, and crowds on the streets of Plano.
Wish us luck as we try to conquer a very frightful Halloween, that is, trying to stay seizure free.
God Bless~ Christine
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