July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.
Then July 22, 2008 came....
Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....
Here begins our journey......
...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds. Diagnosis: Epilepsy Cause: Unknown We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.
So I have yet to share anything about Jake's amazing Wish trip. So here are a few pictures of the little man getting his wish....Surfing like Scooby Doo! I want to add, both kids and even their old fart parents picked it up quite quickly. The instructors even said several times..."we dont deserve to be paid, we did nothing for you guys!" our kids are rock stars!
"we're leaving....on a jet plane....
now that's first class baby
Heading out to catch some waves
surfing on the first wave!
Hard day's work...sacked out
If you can imagine it, you can create it. If you dream it, you can become it.
The Peters family has set up a trust fund for Jake to help with hospital bills, ER visits, medicines, and anything else Jake will need for the future. You can help this family out by clicking the secure paypal link below. If you have questions about donations or wish to do it by other means, please contact me at email@example.com. Thank you so much for your support!
Stop!! Before you shop, go to http://www.shop.epilepsy.com/ . All purchases made through shop.epilepsy.com help fund epilepsy research, therapy development, and epilepsy education initiatives through The Epilepsy Therapy Development Project and Epilepsy.com. Almost every store is represented and it tells you how much is earned with your purchase! AWESOME!!!
*Epilepsy is a condition caused by periods of abnormal electrical activity in the brain. The disruption of brain signals leads to a seizure
*More than 2.7 million people in the U.S. have epilepsy. Roughly 200,000 new cases are diagnosed each year
*About 326,000 patients with epilepsy are children 14 and under
*Atonic seizures (drop attacks) cause a sudden loss of muscle tone and collapse. Since the symptoms occur without warning, patients are at risk for serious injuries from a fall.
*Generalized tonic clonic seizures (grand mal seizures) initially cause stiffening (tonic phase) and breathing disruptions (including breathing cessation). The symptoms are followed by limb and facial jerking and a return of breathing.