I am so embarrassed that it is so long between posts. I keep telling myself I will get better and then I go to look at the date of the last post and it is weeks not days!
Therefore, I will post this evening, however, it will be short and boring.:-)
We went to the neurologist today. I so look forward to these trips. I am not sure why, but I literally count the days between appointments. The visits usually take all of 15 minutes, which are far less than the hour car ride there and back.
Today was a good day.
Last night we put Jake to bed and within 20 minutes he was already seizing. That sucks! Even spookier, is when you watch him on the "night cam" on the video monitor, the seizures are much more disturbing than in person. His eyes are wide open and glow like some demon child. Then there is the delay. Uggh it weirds me out even to recall the way it looks.
However, even having seizures last night so soon upon falling asleep. Jake has been doing much better.
Dr. H noted it, as have a few friends that don't see Jake all the time. The have stated that his gait is much more steady and his speech is much improved. I don't always notice these " little things" as he is my shadow throughout the day.
Dr. H said that this improvement is most certainly because the seizures are diminishing in number and in length! YEAH!!
So although seizures suck, I am so very happy to be seeing fewer and fewer of them.
Lately the biggest "Jake dilemma" is his excessive talking and question asking!! The child never quits!! We ask him "Jake do you ever stop talking?" and his response is "yeah, not so much?"
Although, the nonstop verbage is QUIT annoying, I remind myself of the many months when he was barely verbal. And when he did talk you could barley make out what he was speaking, as his words were so jumbled with nonsense, drooling and slur.
So, as the non stop drilling of questions continues I try to remember these times and be thankful for the thousands of :
"Mom, why, how, what's....?"
For this annoyance I am so very thankful!
Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful.”
Friday Fellowship - Jenna Buettemeyer
23 hours ago