As I was sitting here reflecting how fortunate we are to receive such an amazing gift from Make a wish and telling mysef how much we don't deserve it, I happened to find some pictures from "back when."
I remember when we started this wishing process, we were told initially that epilepsy doesn't qualify. Apparently there were others who disagreed. They thought Jake's type and severity certainly did qualify. "They", I think was mainly Dr. H. I am not for sure, even to this day, how Jake actually ended up qualifying, but i still remember that call telling us that Jake would be getting a wish.
The voice on the other end said something about Jake's disability being dramatically life threatening. I specifically remember not hearing what was being told to me by Make a Wish, but worrying that I could not get a call in the neuro fast enough. life threatening?!
Throughout all this, I think I have had blinders on , as to the severity of Jake's condition. I think the "mommy mode" took over and I didn't actually grasp what was happening to my son.
Wow, what a road we have traveled.
Friday Fellowship - Jenna Buettemeyer
23 hours ago