J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


Monday, May 17, 2010

ASI Birthday party

Better late than never

Jake had his first "real " birthday party this year, courtesy of ASI gymnastics. And what fun we had!

Matt told me at least 3 times throughout the party how cool it was and how great the staff hosting the kiddos was.

I think it is safe to say all the guests had a great time.

If you are ever wondering where to have a party , I tell you ASI is the place!

They also host parents night out on Friday's. We are looking into sending the twerps to those as well.

The staff is fully aware, informed and comfortable with seizure disorders, the whole place is padded, and the kids have the best time!

Addison has already declared this is where she wants her brthday party to be next Decemeber.

Not only did the staff completely enteratin the party while providing a safe enviroment, I did not have to lift a finger! They thought of everything! I literally just showed up with the kids and the rest was already done.

Enough from me though, I think the pictures of the true glee and excitement on all the kids faces speaks more than any words.

Silly Boy!


Soooo very proud of his "Birthday medal!"  he still carries this piece of jewelry with him everywhere!

Look how engaged and focused they kept the kids!  I don't know if I could ever have done that!

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ASI Gymnastics

We can not and could never Thank ASI and David Holley enough  for giving Jake the most AMAZING birthday party!

“At times our own light goes out and is rekindled by a spark from another person.Each of us has cause to think with deep gratitude of those who have lighted the flame within us.”

~Albert Schweitzer

1 comment:

Party Koozie said...

Gorgeous…everything is perfect. FUN FUN FUN