Jake had not one seizure!
He did not shake!
He did not stutter, slur, or drool!
He even did not wear his helmet to play around the house.
Those 3 days were a blessing.
Now, however, the beast they call Doose Syndrome is back with a vengeance.
Yesterday Jake had 5 tc's.
Then later in the afternoon, the absence seizures started back.
This morning he had another tc and the drops returned.
I fear we are going back to over 50 a day like he was having before the hospital stay.
This inconsistency of seizure control and lack of medicine to cease the seizures are some characteristics of the beast that invaded our house in August...The beast called Doose Syndrome.
*Myoclonic-Astatic Epilepsy usually occurs in children with an uneventful history; there is likely to be no pre-existing neurological disorder.
*It clearly affects more boys than girls at a ratio of about 3:1.
In 24% of the cases, the epilepsy starts during the first year of life (at 2, 4 or 5 months of age).
*In 100% of cases, the child develops myoclonic and/or myoclonic-astatic (or drop) seizures. The -astatic (loss of muscle tone) feature of the myoclonic-astatic seizure is rare and unique to MAE, and is the most important and distinct feature which helps differentiate it from other syndromes.
*In addition to myoclonic seizures, children may also have a combination other generalized seizures including tonic-clonic, absence and non-convulsive status epilepticus and, rarely, tonic seizures. See Seizure types.
* MAE is rare, representing only 1%-2% of childhood epilepsies.
*MAE is characterized by difficult to control seizures that often occur throughout th eday. The can possibly impair a child's learning and development opportunities.
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