J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


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Sunday, May 10, 2009

Happy Mother's day



I hope everyone enjoys this day as much as I have been!
I am so thankful for the amazing past several days and pray that there are many more to come.

This is surely one of the most wonderful Mother's Day ever.

Besides the fact that Matt wrote me a love letter! Yes, an actual love letter. He loaded me with gifts. The kids crawled into bed with me bright and early and scratched my back and massaged my feet, and we just finished a much needed walked.

Happy Mother's day to all the wonderful moms I know, especially Babi and Granny.

You ladies grace us with so much love, understanding, and patience during these difficult times.
Thanks for all you do for us!

Love you!



Mother love is the fuel that enables a normal human being to do the impossible.




~Marion C. Garretty, quoted in A Little Spoonful of Chicken Soup for the Mother's Soul


God Bless~ Christine, Matt, Addison and jake

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