J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


Monday, April 19, 2010

Hair today, gone tomorrow

This is how our sweet turd,otherwise known as Jake, approached me about a week ago.

Yes, with a large wad of his sweet, baby boy, blonde locks in his hands.  I almost fell to the floor in a panic!  Where was the "spot" that all this hair came from.  Luckily, because he has so much hair, a bald spot was barely visible! 
Phew, because that hair makes me smile and I don't ever want him to lose it.

Although, I love his long hair, especially when it curls in the humidity, one must get a trim every now and then.  Jake was certainly due for a cut this  apast week.  The Texas heat and that mop of hair scres the begeezies out of me, in regards to seizures.  I also, figured, it may be a good idea for him to actually be able to see what he is trying to read in school, and where he is trying to travel to down the hall.

So after gymnastics Thursday, I took him to a new hair salon, as his normal kids place was closed.

Jake is stoked about getting his hair cut. I am a tad nervous, as I don't trust many with my baby's hair.  My "sign" should have been when Jake looked up at the hair dresser, now armed with shiny new blades, and said "how'd you lose that tooth?"

She proceeded to cut and it appeared to me she was acknowledging my request to "keep it long" " just trim it up."

It took about 3 steps out of the door, before the waterworks started.  These weren't "pregnant, drama queen" tears, these were "MY BOY HAS A MULLET" tears.  As Matt said, "he looks like he should be driving a 76' Camero....those words did not really help the situation.

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Luckily, I was able to get an appointment with Jake's regular hair stylist bright and early Saturday morning.  Good thing, because I was sure glad to quit walking him around with a bag over his head.

His stylist, literally did not even recognize him.  She tried to give "that boy" away to another hair dresser.

She did do a great job of cleaning up the diaster, that was Thursday's hair massacre, but now all his white blonde has disappeared, as did his lovely locks of curls.

He certainly looks handsome (pic coming this evening) and is very proud of his new ability to lift his hair into a faux hawk, but I am still completely heart broken. 

Is it wrong that I seriously considered dying his hair this weekend, or can't wait until he can get into the pool so I can pour lemon juice all over his head to bleach his hair back to "surfer boy blonde?"

Some of the worst mistakes of my life have been haircuts.
Jim Morrison

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