Jake's story
July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.
Then July 22, 2008 came....
Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....
Here begins our journey......
...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.
Jake's mom, Christine
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Happy Birthday sweet boy!
My, how far you have come! You never cease to amaze me little man. Keep moving those mountains and let nothing stand in your way!
Jake's 2nd birthday
Jake's 3rd Birthday
Jake's 4th Birthday
(swollen and fresh from the hospital)
Jake's 5th Birthday
Because time itself is like a spiral, something special happens on your birthday each year: The same energy that God invested in you at birth is present once again. ~Menachem Mendel Schneerson
(swollen and fresh from the hospital)
1 comment:
Blessed be the name of The Lord for His mercy endurth forever!
My wife came to me and ask me to read your son's story tonight after reading my heart was fixed on the Lord Jesus Christ, whom which died on the cross for your son Jake and He did it (All 4 Jake) so that He may live a more abundant life. May the God of Abraham, Isaac, and Jacob bless your family in Jesus Name! and i COMMAND that the devil loosen him in the name of Jesus Christ our Lord! I promise and give you my word that i will pray for your son Jake to be delivered from this once and for all. I in courage you to read with your son Act 3: 1-28..and see the Power of GOD almighty.
God Bless you,
John M
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