summer blues

I used to love summer.

the sun, lounging in the pool, long days, and pretty flowers.

lately, though, summer is just a big ball of stress.

A couple of Jake's major seizure triggers are heat and lack of sleep.

so in trying to prevent seizures, We try very hard for him to get enough rest and stay cool.

It kind of seems unfair to me, as summer vacation is a kids dream.  Jake and Addison would like nothing more than to swim all day long, come in to eat dinner and then swim some more.

As much as I, a sun worshipper, would love to adhere to this schedule, it has proven to be awful for Jake.  While we try to set limits for Jake, Addison is also effected.

Looking for things to keep them busy on these long summer days in the Texas heat, has proven to be quite a challenge.

Jake has been slowly recovering and regaining seizure freedom from the mistake of missed meds two weeks ago.

However, yesterday we tested the limits for Father's Day.

The kids swam all morning with my dad.   They came in for lunch and a short nap and then hit the pool again with Matt for several more hours.

We put Jake to bed fairly early, as we recognized the business of his day.  However, within 30 minutes of him falling into a slumber he had 2 tc's.

Uggghhh, it is so difficult to balance what the kids needs and wants are.

On top of brainstorming ways to keep the twerps busy, I have found myself dealing with a 101-102 fever the past couple days.  I am sure this doesn't make their days any more fun, as all I have wanted to do is feed the baby and then rest on the couch.

I have happened to find an awesome snow cone shack that certainly helps to cool us off on these hot days, and even found shrinky dinks to help occupy their time in an air conditioned atmosphere. 

But lets face it, as fun as these new adventures may be, they only last a short time and are certainly not as fun as wasting away the long days of summer outside.

Fathers day

(Jake is barking like a seal)

The kids present to Matt...it was framed in a horizontal, 3 window, black frame.

and finally, this is how the kiddos wrapped up the day.  Addison rocking and reading to her little brother.

 

Then followed that beautiful season... Summer....

Filled was the air with a dreamy and magical light; and the landscape
Lay as if new created in all the freshness of childhood.
-- Henry Wadsworth Longfellow