Jake's story
July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.
Then July 22, 2008 came....
Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....
Here begins our journey......
...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.
Jake's mom, Christine
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It's been a while.
I feel like since Jake is doing better I don't have a reason to write. Like people don't want to hear just the same ole' stories about what's going on in our life. I struggle with things to put our there to the "public." Like the negative, the worry, the pain, is a much better read than what I
may have to share these days. Don't get me wrong, we still struggle...in many ways, but gosh, looking back, I can't believe where we have been. I know I say that often too, but today was just hard.....more on that tomorrow.
Because I struggle with his so much, and tonight I read a story of Epilepsy that struck waaayyy too close to home, and I am still trying to process all of it, my precious, sweet, 7 year old, and Jake's big sister will tell her story tonight:
Exodus 23:25
"So you shall serve the Lord your God, and He will bless your bread and your water. And I will take sickness away from the midst of you."
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