Yesterday was a pretty tough day. I didn't expect it to be such,but geez it sure turned into one. A couple of my awesome coworkers had asked me to talk to their club, as they are the sponsors. Since Jake was inflicted with this dreadful disease, these ladies have been there supporting ALL 4 Jake every step of the way. This year , their club decided they would make purple key chains to sell and all the proceeds would go to the Epilepsy foundation. these kids and working moms, newly weds, and young teachers have stayed after school, spent time on weekends, and even used their own money for our cause.
So yesterday I went , as they made purple key chains, to introduce Jake and tell them a little about Epilepsy.
No big deal.
Now, those 30 minutes, are haunting me.
I LOVED being there for the kids. I think they saw me as some strong person and Jake as a normal kid. The questions they asked were absolutely amazing.
But, I felt like a little insecure squirrel.
I have not been in that place in a LONG time! I have remembered and reminisced, but not like this. watching Emmet's video with my peers and the students and telling them about Jake, I again caught a glimpse of what he has had to conquer.
Unfortunately, now I am more afraid than ever. Afraid the beast will show his ugly face again.
I can't stand that guy and what he did to us. I hate those memories.
I hate that when Addison hears a siren she goes into fetal position and bawls hers eyes out, no matter where she may be.
I hate what he has done to our family.
I hate that we have a story to tell.
I hate this beast!
But I do love that I have over 100 Doose mommy and daddys telling, sharing and fighting for our story right now in DC!
The Doose Team has taken over DC this weekend for National Purple Day in hopes of turing that White House Purple!
All of this did happen for a reason, no matter how hard it is/may have been.
"Fall seven times, stand up eight"
My day with the Pioneer Woman
11 hours ago