All 4 Jake: The big day

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine

Wednesday, February 18, 2009

The big day

Tomorrow is a big day. We have the big ole' nuero appointment. I am at a loss of what to even ask, inquire, or what I want to hear. I truly would just like a magic wand. This magic wand could be waved over Jake's head and, "zap", he is seizure free!

That's truly what I want.

I want him to be off of all these medicines, but still have the confidence to know he won't have a seizure that requires "
butt medicine", or a trip to the er, or the anger that comes after an "episode," or the fear that comes in waiting for one to occur.

That's what I want to come from this visit.

However I know, realistically, that probably won't happen.

So in the meantime, I pray to make the right choices for our son, to rid his body of these damn seizures and to also detox him of all these medicines that I have been choosing to put in him.

Wish us luck tomorrow, as we head out to Fort Worth for answers and miracles.

But Jesus looked at them and said to them, "With men this is impossible, but with God all things are possible."

Matthew 19:26

"Out of difficulties grow miracles."

God Bless~ Christine