Sometimes, however I can't bring myself to do it.
This week, or past 2 weeks, have been hard.
Again. our angel has been slipping away.
I take his temp. every 5 minutes, thinking it is because he has a fever.
No fever. The seizures every 5-10 minutes and the inability to hold his head up, or eat his food, or walk from a room to another room, are quite discouraging.
I would like to blog better news, but at this moment I can not, as I simply at a loss as to what I cando tohelp my little boy.
I am not afraid of tomorrow, for I have seen yesterday and I love today.--William Allen White
God Bless~ Christine
ps..sorry Sally, as I know yu hate to hear me talk negatively. everythings fine!:-)
6 comments:
First off, when bad things happen, they do, and saying so isn't being negative. I think a positive attitude is a wonderful thing and important in moving forward, but pretending there are no problems and that your heart isn't heavy doesn't help anyone. You know what, it's the blog posts that were about the worst times that really brought people out because they'd love to do anything to help and support you. It's what makes your blog real. (That's my two cents and I'll shut about that topic now.)
Is Jake still being weaned from a med or taking a new one? Sometimes withdrawal from a drug can temporarily cause more seizures because the body became dependent on it. I'm hoping that's "all" it is and that Jake will start getting better again soon. With all my heart.
Oops, I just reread my comment, and in that first part I meant that the blog posts I wrote on MY blog that were about the worst times were what brought people out to support me. Just spent a day batch cooking meals for Jade, so I'm a little incoherent. :P
Hi Christine :) Thanks for visiting my blog! I just spent a few minutes reading through yours and I am so sorry to read about all the epilepsy problems that your little boy is having. I understand what you are going through, feeling like you want to make their world better...to take it all away. But all you can do is be there, and love them, and snuggle them, and let them know that it'll all be OK.
I'll keep your family in my prayers and keep checking back :)
-Lisa (Elisabeth's mom)
You're not talking negatively..you are venting so that you can take care of your son and get the moral support YOU need. No elephants in the room remember, get it out! Love you!
I am sad- for you, Jake, Addi, Matt- it makes me sad that Addi just wants him to cry so the seizure will be over- it is sad that any child has to be sick, with a cold, epilepsy, cancer, ANY sickness or disease. I just want to live in Dallas so I can see you all the time and help you! I know that is irrational, but still.
The are so many shit%y things going on- something I heard that sticks with me: God is so much greater than our greatest problems.
Just know that we are praying every day, and I love you so so so much!!
PS- No, I have not had a drop of wine tonight either :)
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