J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


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Wednesday, September 24, 2008

Heeee's baaaa-ack!

In true Matt fashion, as the kids and I were leaving to get the special prizes in the happy meal, Matt drives into the driveway.

Those who know Matt and his never ending traveling schedule, also know that he shows back up with out any notice what so ever.

The kids and I are ecstatic to see him and have already sent him on a dinner run. The Madame Alexander dolls will have to wait until tomorrow.

The past couple days have been pretty rough, the waterworks hit at any given moment. Not only has Jake been having "weird" days that are very depressing to watch, but some loved ones are also going through some very difficult times as well. I hate to see anyone going through pain for any reason. I will quote a very wise woman :-) who said:

"Dontcha just wish that conversations with God weren't a one way conversation? Would love to know what he thinks, verbally, rather than trying to figure out clues and signs. Faith is a VERY tough thing to have sometimes, but you gotta have it."

Why is any of this happening to any of us?.....I don't know if we will ever have a straight answer, but it is indeed for some reason, and You have to have Faith!

God Bless~ Christine

2 comments:

Brandy said...

I am so glad Matt is back and what a WONDERFUL surprise. I can see it unfolding in my head and I can imagine how happy all of you were! I must say the quote part, brought a little tear to my eye....So glad for you and I am sure Matt is so happy to see you guys. xoxoxo

Leslie said...

You are really good at this blogging thing...the last two have been really moving...I wish I could be there in Dallas so we could just come over and hang out and help out more! Love you!