Well, I sit here dumbfounded tonight as to what to even say. The outpouring of love and support that has come from every angle and degree is absolutely amazing! When Brandy(B and Michael, you are amazing) said "hey I really want to do this" I was very skeptical and embarrassed about putting myself out there for prayers and support , as I know compared to many people, we have it good! I am honestly at a loss of words tonight reading emails and comments....God does work in mysterious ways.
Thank You to everyone for all your prayers and support! Thanks to my family for being there at a drop of a hat for all the er trips, car rides to school, soccer practices and play dates. Thanks to my friends, who will pick Addison up to play "because she needs it" instead of our usual "wine night." Thanks to those of you who have been with Jake when he has seizures and you treat him as if he still is a person, instead of the alienated looks, or plain ignorance's we usually get. Thanks for my LTF girls who are "saving" my spot in the front! Thanks to my coworkers who are picking up sooo much extra slack as I try to figure out what our next day is going to look like! (Paula this is you too, as you are in the "fields" doing the dirty work! what would I do without my Paula, unfortunately Apollo, she'll probably NEVER offer to sub again!:-))) "My girls" thanks for all you have done...keep that wine a comin'!
I want to especially thank some family, extended family, the president of Cooks Children's and the wonderful team of neurologists and nurses that have given us the opportunity to find some of the greatest care in Texas, if not the country, for epilepsy/seizures.....thanks to you guys and all the prayers we WILL get this under control!
Look at me I turned into a a regular Oscar winner, can't you here the credits coming on trying to get rid of me!:-)
We did have a great day though. It was my nephew Luke's birthday, So donned in his helmet with chingaurd to protecthe lovely stitches, we set forth to conquer an Alvarez birthday party. This is one of Jake's first outings since all this began back in August. He had a great time and I think the cousins were extremely excited to see him. He did have a few "episodes" at the party, but all and all it was awesome to get out and celebrate Luke's 6th birthday.
Jake had much sugar, excitement and fun, and is now sleeping peacefully awaiting a brand new day.
God Bless~ Christine
My day with the Pioneer Woman
11 hours ago