J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


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Thursday, November 27, 2008

I am so Thankful on this day of Thanksgiving.
So thankful to be so extremely blessed. We are blessed by amazing friends and family who have shown amazing, unwavering support as we have been traveling along this roller coaster. Blessed by amazing doctors who relentlessly continue to try and give us a seizure free day.

I know watching little Jake continue to have seizures is very frustrating and discouraging to many who knew the young man who never met an obstacle he couldn't conquer. What is evident and so visible to me, is that little man is still here. He has challenges now, but his challenges are harder for us to watch, than they are for him to defeat. This is why Our Lord made children so resilient. And our Jake has shown the most amazing resilience I have ever seen. For this we are blessed.

I feel there are two paths and I was given a choice of which one to follow. The one where I feel pity, sorrow, anguish and fear for the bump in the road that was given to us, OR I can accept it, learn from it, and grow from it.

I choose the second!

Jake has chosen the second.

This is a learning experience and were chosen by God to be strong enough to learn, grow and scream out about our experience. I am unsure as to why exactly we were chosen, but the fact of the matter is we were "chosen." Now it is my turn to do something with this unfortunate circumstance, because it will get better and it could be MUCH worse.

We often think of great faith as something that happens spontaneously so that we can be used for a miracle of healing.
However, the greatest Faith of all, and the most effective,is to live day by day trusting Him. It is trusting Him so much that we look at every problem as an opportunity to see his work on our life.
~Rick Joyner
Happy Thanksgiving!
God Bless~ Christine

3 comments:

julie said...

Well put Christine!!!! Rick Joyner is a very smart man!!!

Lisa A said...

Thank you so much for posting! Perfect end to Thanksgiving! Much Love!

Brandy said...

Let me state this line again, as it is so profound and may be missed amongst his other great words:

"It is trusting Him so much that we look at every problem as an opportunity to see his work on our life."

WOW. That is amazing. What an eye-opener for me. Look at every problem as an opportunity. Hmm. Very profound. Thank you Christine!