All 4 Jake

Since the malicious murder of Spot Alvarez Peters, more fish have come and gone in the Peters household.

We were convinced to buy 3 tiny tetra fish by the pet store employee, who probably wasn't a day over 16. He assured me, Jasmine, Ariel and Prince Eric, are very hearty and would be hard to kill. I believe Prince Eric lasted 4 hours, Ariel and Jasmine, however made it through to the next morning. It was late morning when we checked on the last remaining prince and princess, only to find them sucked into the aquariums filter. It was not a pretty sight.

This time I made Matt and Addison make the trek to the pet store to pick out yet another fish. They came back with another beta, Jasmine II, and a hermit crab, SlugBug, who we have yet to see, as he has hidden in his pyramid, or under the dirt the duration of his stay at the Peter's household. Word must have hit the pet store about the Peters murders and Slugbug was not going to show his face in fear of meeting his fate.

Jake went up in his meds Friday. This leaves only one more week of the long wean before we need to check blood levels and evaluate seizure activity.

I have been told since day one, that we wean so slowly onto his Lamictal because in combination with his Depokote a "deadly rash" can occur. So since day one we have been on the lookout for this deadly rash, that basically burns the skin off of the patient.

Well Saturday afternoon, a day after the "upping" of the meds....I notice a rash. I am thinking "are you kidding me?" The "deadly rash" starts on the tummy,check, is mottled or lacey, check, and can look like a burn or have a burning sensation, check...I didn't notice the rash until jake complained that his belly burned.

I immediately call the nuero on call who informs me to stop his Lamictal...again I am thinking "Are you kidding?" We have come so far and I know that you also have to "wean off" of the drug. I fear a reaction from not weaning off and even more so, fear a seizureful night!

I decide to take him to an after hours clinic. They get in touch with the nuero and they both decide this is not the "deadly rash" and my son will indeed make it through the night, as opposed to having all his skin burn off.

Phew, because we were not looking forward to picking up the layers of skin that may be left from this "deadly rash."

We are unsure what caused the rash. It was obviously an allergic reaction to something,as his eczema was extremely inflamed as well.

All is well now. We are just anxiously awaiting the day when we can count less than 5 seizures a day. We are over 6 weeks stitches free though! (knock on wood)

It is Epilepsy awareness month. Research the 36 different types and the related syndromes. It truly is not what you think. Wear Purple!

God Bless~ Christine