All 4 Jake: Grams

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine

Saturday, February 7, 2009

Grams

This song by Addison Road is just amazing to me. I can listen to it a million times a day and still not be sick of it. The words are so inspiring and carry on the theme of our blog. "Everything lies in Hope now, Faith some how..." Just amazing. I feel as if they are singing just to me!

Now for a bit of information, maybe symbolism, irony, call it what you will....Addison Road is actually what Addison, our dear daughter, was named after. Well to be 100% correct, Addison Way. She was named after Wrigley Field, home of the Cubs, which is on Addison Way.

The year my Grams, passed away, Matt used her wedding ring to ask me for his hand in marriage.
She was a huge Cubbie fan. Matt too, is a follower of the Cubs.
His bedtime song to the kids goes like this:

"Take me out to the ball game,
Take me out to the crowd,
Buy me some peanuts and cracker jacks,
I don't care if we ever get back,
"cause it's route , route , route for the CUBBIES,
If they don't win it's a shame,
For it's one, two, three strikes and your out,
at the ole' ball game!"

Addison's due date was the day my Grandma passed away, 5 years earlier. She was named Addison Mary, after Matt and Grams love for the Cubs, and Mary after my Grams.

Grams is surely looking out for us and giving us strength through all this.

(I also know Grams was very proud of her Cubs this year!:-) )

I find it amazing how things work there way around.

Therefore the Christian heart, since it has been thoroughly persuaded that all things happen by God's plan, and that nothing takes place by chance, will ever look to him as the principal causes of things, yet will give attention to the secondary causes in their proper place.

-- John Calvin

God Bless~ Christine