J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


Tuesday, December 30, 2008

Addison's Birthday party...take I

Addi's party from Saturday night.

All she asked for was for her cousins, aunts, and uncles to be there...well, and "her Mimi and Papa."

The party, and the season, have really snuck up on me, so I realized like 2 days before the big bash, "I have done nothing." By this I mean literally nothing.

No theme, No cake, No presents, I don't even know if invited people yet. However, the ole' saying "If you build it, they will come," rang in my ears, so I set forth on this birthday party mission.

I start this adventure by asking Addison what kind of cake she wants. She states, "Hello Kitty," as we threw her a hello kitty bash a couple years ago. I try to convince her to go with another theme. She suggests soccer. Cool, soccer is good and it's different than the typical princess theme most 5 year olds want. Then she adds the dreaded words that are still echoing in my ears...."and I want you to make the cake. "I don't want t from the store."

So here I am 2 days before the party, with nothing, including not a clue on how to make a soccer cake.

I then remember the garage sale pan!

A month or two ago my mom bought a Wilton ball pan at a garage sale.

Could I really pull it off?! A round cake? I am terrified!
I set out with a will...b/c where there is a will there is a way, right? At least, that's what is getting me through this horrid process.

I make lists for Matt, hit the party store and sit down to try and conquer "The Cake!"

Now it is by no means perfect, but for my lack of cake decorating skills, I was pleased with my self. Pleased, even if Matt kept walking by it and laughing!

We sang, ate, laughed, cried, shared strores from ole', and dreamed about stories to come.

The others can take Chuck E Cheese, I will stick to our intimate family parties where I can usaully hear my self think, we don't spend a fortune, and I don't have to worry about losing one or both of my children.

Never underestimate the importance of having fun. I’m dying and I’m having fun. And I’m going to keep having fun every day because there’s no other way to play it.
~Randy Pausch

God Bless~ Christine


Brandy said...

I LOVE the cake and I LOVE her shirt! You did a fabulous, fantastical job, lady! You always do...

Anonymous said...

The cake rocks ~ sooo great. Jake and his party hat perched on top of his other hat is priceless.