The Dr. looked at Jake's face,head and chin, shook his head and mentioned "vns" (vegas nerve stimulation.) This is before I officially "reported"our seizure activity. I tried to "change his mind and convince him that many of these scars, scabs and bruises were simply that of a three year old. He then informed "the trembling" and loss of coordination is not normal.
I guess the magic med number in the neurological word is four. Once you get to 4 drugs and have tried four drugs, it is doubtful that any other drug will work. So you are then labeled as "drug resistant."
For Epilepsy that narrows your remediation choices to the ketogenic diet and vegas nerve stimulation.
We are to start our "fourth drug" this evening and after 7 weeks if it has not controlled the seizures, we need to be prepared to tell him what our "choice" is...the keto, or vns.
I will not lose hope that this fourth drug will not work yet though....Feb. 19th is Matt's birthday and 4, as in the 4th med., is our favorite number! I can't say that is our lucky number, as I have nothing to judge that on, but it is our favorite. My friends know what a number freak I am, so hopefully these are good signs.
The keto diet is a diet very high in fat and low in carbs. This is probably my first choice, after not researching either choice very much, but all my kid eats is carbs! Jake used to love chicken, meat, veggies etc...but now he won't eat unless it's carbs....or ranch dressing.
I don't know what will we do. Hopefully we won't have to make this decision. I will, however, read all the books, pamphlets and videos that were given to me today and make Matt do the same when he gets back.
I just thought of something else..."7" was my volleyball number and 19 is the number of some of my friends anniversaries, as well as being special to them in other ways (Go Broncs!). So we have "7" for seven weeks, "19" for Feb. 19th, and "4" for the fourth med!:-)
Who wants to play the lottery?!
When it is dark enough, you can see the stars.
~Charles A Beard
God Bless~ Christine
around 5 seizures today.