J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


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Wednesday, March 4, 2009

America's next Top Model


I started this blog trying to inform everyone that the shirts are here!! I will tell you about those in a moment,but first I got super stoked watching America's Next Top Model. This show has always been a little secret sin of mine. I have always loved and watched this show and am soooo excited about the new season.



As I am watching this evening, I am also trying to blog the awesome shirts that are in , but the blog keeps coming out in Hindu, or Malaysian or something like that. I email a friend for help and continue to watch my show.



I watch as they walk down for their first run way show. My heart starts to beat fast, as they strut down a strobe lit runway. I notice everything little thing that may be a trigger for our little seizure man.



The next thing I hear is a model announce..."I get nervous walking down the runway lit by strobe lights, because anything like that can upset my brain and affect my Epilepsy."



Too weird!! I am obsessed with the way "things come around,:" and cannot believe their is a new model with Epilepsy.



I am sorry she has Epilepsy, but am soo voting and routing for her! She is beautiful, normal, and a new voice for Epilepsy!





Exciting part II




The shirts are here!!



Again check out the stroll for Epilepsy site on the top right. Make a donation if you can, stroll with us, or simply buy a shirt.



The shirts are a mere $20. A portion of the proceeds will benefit the Epilepsy Foundation! Check them out







(front)




(back. The back will actually black)





But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint



Isiah 40:31

This post took about 2 hours, literally! The kids keep getting up and wanting band aids, or covers, or kisses, or more lights on. This last time though, Jake needed "to go poop." We still have to jump up and take him to the restroom, as to avoid more er trips and gahes inthe chin. So as I am holding his little legs , as he tries to push his little cacadoody out,and he keeps asking me:


"do you hear it?"

"do you hear my toots mommy?"


I finally reply "yes Jake, now hurry."


He replies back, matter of factly:

"I have gassy, gas, do you smell it?"


The kids truly keep things in prospective.:-)



God Bless ~Christine


PS...order shirts by leaving a comment with a size and your contact information Or email me at christine_peters@sbclobal.net. Thanks Dana for that important bit of info I forgot to mention!

2 comments:

Dana said...

Christine/Brandy:

Where do we order the shirts? I will gladly order one, but can't find a link anywhere to do so.

Lisa said...

'gassy gas'....lol

So interesting about America's Next Top Model. I don't usually watch that show but I will admit to having seen marathons of it on MTV or some other station like that and I really did like it. So now I'll have to check it out :)