J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


Tuesday, March 17, 2009

Spring Break

Yeah! Spring Break is here and the cold rainy weather has lifted. We are enjoying absolutely gorgeous days here in the DFW area.

The kids and I went to the Arboretum yesterday. We then walked to drop Addison off at gymnastics. Today we walked to the park and flew kites.

I love Spring weather and changing seasons. I hope that the changing of the seasons will also bring new changes in Jake.

I will definitely commit to posting pictures and more news on our happenings with Jake tomorrow, as for now I need to get Jake's millions of meds ready so he can hit the hay.

Don't forget to join Jake's team in the stroll for epilepsy on April 4th. Tshirt orders will go in tomorrow, so if you would like one, please leave a pos tindicating the desired size.

OH, in cool news, well sorta, if you go down to the left and read the "in the news" tickers you will see an article about video games and seizures....this is Jake's neurologist.

More tomorrow

.For, lo, the winter is past, the rain is over and gone; the flowers appear on the earth; the time of the singing of birds is come, and the voice of the turtle is heard in our land.

God Bless~ Christine

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