Jake's story
July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.
Then July 22, 2008 came....
Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....
Here begins our journey......
...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.
Jake's mom, Christine
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First night, Geisha bar and lounge(really not what it sounds like!)) It is a Yummy Japenese Teriyaki grill. The first time we went Jake literally stood by the fire exit, stating, "It's a fire Drill!"
He idd MUCH better this time, even bellying up to the bar and watching a little Sports Center on the flat screen.
The kid Knocked out Daddy's steak and lobster and even did it mastering the chopsticks!
We then hit the Dallas Arboretum, as it is an annual trip of ours. I wish I was a better photog. I pretty much butchered these with unwanted shadows. BUT, it was fun all the same!
We also meet our dear Tracey for lunch at Mockingbird station. The easiest way to get there was probably driving, but I wanted to make it an adventure, so we left a hour early to meet "Super T" by train. W e had a great time and it was so good to see Tracey and her baby bump!
waiting for the train
It's here!
We flew Kites:
we played a great game called "The picnic Game" I learned about it from another blogger, and Granny and Poppi were able to find it and send it to the kids. It's great fun, this coming from someone who HATES board games and movies!
We did a little shopping (like my Walmart shirt?)
and the kids actually got along for 5 seconds, and long enough to play bride and groom, however Addison was a little annoyed there were two brides. Thank goodness Daddy is out of town for this one. What the pictures are not showing, is that a couple minutes after this, therewas football put in Jake's belly and he was proud to announce "I'm having a baby, touch my belly!
We also played mucho hours of the Wii. Love me some Wii. Tracey and I were laughing about a moment, that was actually truly a "wake up" moment for me. Jake's in the stroller, doning the oh-so-gorgeous-don't look at me- blue helmet, T and I are saying our goodbyes and Addison yells "seizure!" I din't flinch, as this is what Addison does, however T kind of looked at me, I then looked around and here we are in a lunchtime crowded Hot Spot, and Tracey and I laugh, because to everyone else, Addison yelling "Seizure" might as well been somone yelling "FIRE!"...and we didnt flinch.....(how's that for a comma splice)
"Life is full of misery, loneliness, and suffering--and it's all over much too soon."
Woody Allen
God Bless~Christine
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