Jake and I came to Fort Worth on Thursday for a check in appointment with Dr. Hernandez, as Jake's seizure activity had a tremendous increase this past week. He advised some therapies to get us through the evening and if things weren't any better to call in the morning and we would probably have to check in.
Friday morning came. I recruited my mom over early to be another set of eyes for me, as I have sadly become so accustomed to seizures, that I wasn't sure what was "better," worse" or "the same." She advised that 10 seizures in the 10 minutes she had been there ,probably was not normal and that I needed to call the doctor's office.
I called, and as expected we were asked to come to the er at Cook Children's and check in.
So I made arrangements for Addison , as Matt was still out of town, and Jake and I made the long wet, trip in the pouring rain.
We arrived in the crowded er and were instantly whisked away to a back room where we waited to get a room upstairs. The wait was actually quite pleasant, as the nurses and doctors showed amazing compassion and understanding for or situation. I certainly didn't expect that after seeing how busy the emergency room was upon our arrival.
We are still here and will probably be for a couple more nights.
I didn't expect myself to be able to leave Jake's side, however I asked Matt to stay the night last night so I could get a good nights rest and spend some time with Addison.
I didn't want to leave, but thought it would be the best choice for my kiddos.
Addison, Babi, Papa and I met for Italian food. I took Addi to an ice cream shop. We then planned to have a girls par-tee and bond a little, as I told her what an amazing big sister she is.
Well, we didn't make it past 9:00!
We didn't have to spend 10 minutes chasing Jake around the house to give him his meds.
I didn't have to make the trip a millions times down the dark hall to Jake's room to check if he was ok.
I didn't stay awake all night by the blue blur emitting from the video monitor, begging me to get a closer look at Jake.
I didn't have to break up fights over bed space in the middle of the night, as the twerps struggled over the ideal sleeping spot.
I didn't get up and out of bed before 8:45 this morning!! It has been since August, that I have slept past 6:30 am! I logged a full 12 hours of sleep last night and could not feel better.
Although, last night was amazing, I didn't know my heart would ache so much being away from Jaker-doodle and not being able to help him.
I didn't know how heart breaking all of this was to Addison, until she kneeled in bed, in the darkness of the room and begged God to make this stop happening to her brother. For him to quite "busting his chin," having seizures, and staying the night away from her.
I didn't know how much my arms longed to carry Jake to and from the restroom again.
I didn't comprehend how hard it would be to tell my baby girl goodbye once again and that I didn't know when I would be home.
Finally, I didn't realize and still can't fathom how many people are reading about us, praying for us, and helping us get through this bump in our road!
The power of prayer and awareness is truly amazing!
Be strong and courageous. Do not be afriad or terrified because of them, for the lord your God goes with you; he will never leave you or forsake you.
God Bless~ Christine