This is Brandy, Christine's friend, updating the blog as they are en route to Cook Children's in Fort Worth. They have an appointment with the neuro at 1:30pm. Jake is not doing as well as hoped. Although Christine's previous update (prior to the Century Club post)spoke of improved clarity and a decrease in seizures, they are back and with a vengeance. The past two mornings he has woken up with "tons of seizures and multiple TC's". To remind you a "TC" means TONIC CLONIC (Grand mal). Her little Jake falls unconscious, muscles tensed, and falls down on the spot. This is the Tonic Phase. Then his muscles will contract and relax rapidly, causing convulsions and his eyes roll back. That is the Clonic Phase. Imagine witnessing this and just counting the minutes on your watch to see how long it lasts. If I remember correctly, she has clocked one at 11 minutes before (maybe even 16). Can you imagine? Gut wrenching. After the convulsions cease, he will fall into a "Post-ictal sleep". He has had 3 of these, as of 9:30am this morning.
Please pray for strength, the doctor's knowledge, patience, courage to ask questions she may not want to know the answers to, a plan, a backup plan, Christine's extended family, Jake's caregivers, Addison, anything and everything that will help JAKE. Is it a diet, medicines, a mix of medicines, surgery? What? What is it going to take?
On top of all this, we also hear Matt has been in the ER in Houston with a major bug, vomitting and what have you. He is expected to come home tonight or tomorrow.
I will update as I get information. There is power in prayer and we know HE is listening. All 4 Jake.
Tweak by Tweak
3 months ago
3 comments:
Brandy:
Thank you for the updates! Hopefully the doctors can adjust the VNS to actually work for Jake and figure out what the few successful days were composed of that differed from the past 2. I cannot even imagine what they are all going through. I also cannot imagine going through it with my husband out of town, not to mention in the hospital himself! Like Julie said on the other post, let's hope this is the rock bottom and this doctor's appt. will be the beginning of the climb up!
Brandy, Thanks for keeping us updated. I will keep them in my prayers. I hope they can get answers. Susan
Poor little Jake! Poor Christine! I'll be praying for them.
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