Pictures, practice and parties

Wow, this past week has seemed like 2-3 weeks.

I can't believe we actually stayed in the hospital for 6 days!

I "checked in" for what I was thinking going to be a day or two....6 days later we emerge into sunlight.

What a transforming week.

We were admitted to the hospital per doctors orders, as Jake was seizing 100-200 times a day.

Most of Jake's seizures looked like this:

http://www.epilepsyoutreach.org/# (click on watch Emmet's story)

He was seizing more than he wasn't.

Jake was admitted to the EMU (Epilepsy Monitoring Unit at Cook Children's). He entered with one dear girlfriend, a emu eeg tech, and left with many! He fell in love with many pretty nurses and even admitted to them "I can have more than one girlfriend." He had a couple male nurse s who he later named stuffed animals after.

(First day after connecting the "leads" for monitoring)

One morning Jake awoke and the first thing out of his precious mouth was, "When do I get to be a doctor?"

Jake amazed everyone at the hospital during is stay, as he knew all the technical names for the procedures he had done, informed nurses what to do, and watched with excitement as he was poked and given MANY iv's. The day before he even assured his aunt, "It's ok if you give me the medicine in my booty." (the dr. advised us to give him the Diastat as Jake was having "cluster seizures" and we needed those to stop in hopes to prevent brain damage.

Jake had many visitors, one being Uncle Mike!

After several days of seizing, the doctor, finally agreed to let Jake "free" from the monitoring, and the "leads" were taken off.

Aunt Tiffany agreed to take Jake outside and see the sun! The patient refused to sit in his wagon, but rather pull it behind him.


Jake loved the feel of the water, soft, and slow falling from the fountains at the prayer garden.
He told me he wanted to sit and" feel the sun(Jake's words)", after days in a cold, damp, dark hospital room.

He made a bird's nest on Earth Day.


and was even visited by therapy dogs

We left the hospital after having 2 AMAZING seizure free, clear thinking days and headed back home. Jake rested a few hours at the house and then hit the much anticipated TBall practice!

The weekend brought his own birthday party!


His first view from his new clubhouse!

Jake driving away "leaving seizures behind!" (notice the helmet in the bed of the truck)


Although we had a couple really good days upon leaving the hospital, Saturday was pretty scary. By 10:00am, Jake had already logged over 70 seizures. He was only up 3 hours at this time. I finally, at 11:00, made the call to the nuero on call to seek advice. He recommended a minor med change. Apparently this minor change has worked wonders.
Jake had an awesome day yesterday and today at school.
Today's seizure log, that I am given every day upon picking Jake up in car pool, read "GREAT DAY!"
Do you even realize the last time I read such wonderful, amazing, and encouraging words!?
Besides the fact , his seizure activity was obsolete, Jake was kind, loving, and his personality was back at school.

No one at school, I believe, has seen Jake's TRUE personality. The boy the Matt, Addison, and I knew and loved. The drug free Jake. The side effect free child. The boy who doesn't appear to have major special needs.

Our son was back, at least for today!

I praise God for today and pray for many more like this!

Thank you to everyone for your thoughts, prayers, support, and patience.

"The Lord is gracious and full of compassion, slow to anger and great in mercy. The Lord is good to all, and His tender mercies are over all His works." (Psalm 145:8)

God Bless~ Christine