J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


Sunday, June 7, 2009


I know I have been MIA, but can't wait to get back at it now that I am OUT OF SCHOOL!!! Yeah, more time for my own angels, as opposed to those I come to love and care for every school year.

I have much to report and dote on, but tonight a small little tid bit, and I promise I will keep up better.
One of Matt's best friends has made an annual fishing tourney into a awareness tournament. Matt has been down in Port Mansfield fishing this past weekend with an amazing bunch of guys.
I went to college with John and met his brother through him, obviously. At John's wedding last summer, a week or so before the "beast" entered our house, I met the most awesome group of friends and their wives as well. I felt like I knew this group of people, because they were so welcoming and kind.

Like I said, at this time, Jake was still, a normal kid.

Late July happened, and this past year has been a blur or doctors visits, hospital stays, ambulance rides, and a million different meds, however the people that love has and support us have been a constant.

Well, J.B, as Matt calls him, sponsored a fishing tournament in honor of Jake.
The boys and the group mentioned above, have made an annual fishing trip, The High Strung Classic, and this year decided to make Jake the honoree.

How amazing is that?
I have not been able to talk to Matt much this weekend, as fishing hours are absolutely ridiculous and cell phone range is iffy.
However, I can't wait to hear about the fun times that were had! This is a trip Matt most looks forward to every year and to have Jake be a special part this year is even more special.
Thank you John and the "Pasadena Crew!" I can't wait to see how it went
Here are the kids modeling the shirts that John, one of the most kind hearted men I have ever met, designed.

Those that know me know I look for or see symbolism in amazing daily acts. This weekend I saw the most amazing thing. I have never seen it before in my life. Addison pointed it out, and you had to look very closely to see it. Luckily my, sunglasses' obsessed, husband just purchased me polarized Ray Bans, or I may not have been able to notice this amazing spectacle!

This is proof that God is absolutely amazing! He was truly blessing us with great friends and great support this weekend. This is my sign! (I am an awful photag, but hopefully you can see the rainbow in mid sky.)
"My God, amazing is he
Giving you peace if you only believe,
faith is the key in time of need,
My God is amazing is he."
Deniece Williams
God bless~ Christine

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