J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


Saturday, August 1, 2009

August 1st, 2008...enough said

I remember the sun shining through the blinds, and thanking God that Addison and Chad had not decided to climb in my bed in the middle of the night. One kid's knees and elbows in my back all night were quite enough for me.

I remember it so distinctively.
I turned towards the window to roll out of bed to make the morning bathroom break.
I remember exactly how the room smelled.
What I was wearing.
and even my thoughts, that I couldn't wait to "go" and then come back and get some cuddle time with Jake.

My feet didn't even hit the floor, when I heard the strangest sound and then the bed, almost violently shake.

I had remembered a similar incident a couple years earlier when the space shuttle blew up over East Texas. It was similar in the respect of a bed doesn't usually shake like this, but different, because I didn't hear "that sonic boom" I heard a couple years earlier, and I knew something was very amiss.

I turned back to the bed, only to see Jake flat on his back. His toes stiff and pointed inward. His arms jetted out, hands stiff and curled in.

his body was violently jerking uncontrollably.

Then my eyes made their way up to his head.

The most distinct "clicking noise" was coming form his blue mouth.

His eyes were open, but rolled all the way back in his head.

I slightly remember trying to shake him "awake."

I then recall being on the phone, almost calmly asking my mom, if I should call 911 or just let it pass.

About this time I see his lips going from blue to purple.

I immediately hung up with my mom, called 911, and called Matt on the other phone.

The rest is a blur.....For what ever reason I do remember some female cop in the house, along with what seemed like a million other people in uniform, telling me to get dressed and get my purse (lord knows what I was or wasn't wearing). I heard her, but it didn't sink in that I had to go anywhere, because I didn't want to walk away from my baby even for a second. I then remembr her looking at me again, as my precious baby was being wheeled out on a stretcher, with tubes from his arms, telling me I had to get my purse.

It then hit me I had two other kids in the house, I couldnt leave!

Next thing I knew, my sister in law was in my house and I was being loaded in the ambulance with my helpless son.

Somewhere in all this I guess I had called her to come get Addison and Chad.

Jake didn't wake up or make a sound until we were being unloaded from the stretcher and into the er.

The rest was a blur of tests, cat scans, "pokes",and eeg's nurses and doctors.

What seemed like 3 days was actually only a day.

We were released that evening at around 10:00 pm, as the neurologist made a point to keep telling me, "we don't treat seizures inpatient."

My brother said it best "they sent you home like he was a new puppy, here have fun with this." no instructions, no medicine, no treatment.

Apparently Matt had caught an immediate flight back to Dallas, because he was there with u s majority of the day and was there to take us home.

We put Jake to bed and within 5 minutes "they started again."

Seizure after, 5 minute seizure. About the 3rd or 4th time I called back to the hospital and they told us to come back in, because we needed to be checked back in.

Jake was heavily doped up and finally was able to sleep peacefully without seizing. I think he was the only one catching any z's that night.

The Lord is my shepard Ishall not want. He makes me lay down in green pastures; he leads me beside still waters.

He restores my soul. He leads me in right paths for his namesake.

Even though I walk through the valley of the shadow of death, I fear no evil; for you are with me, your rod and your staff- they comfort me.

You prepare a table before me, in the presence of my enmies, you annoint my head with oil; my cup overflows.

Surely goodness and mercy shall follow me all the days of my life, and I shall dwell in the house of the Lord my whole life long.


God Bless~ Christine

1 comment:

lisa said...

Ohh the many tears since that magical night turned into the hell of the next morning. I will never forget following that ambulance to your house, think this is for MY family. The noisey neighbors were staring at us. Trying to downplay everythign when Addie and Chad woke up to find me and not you. How everyone's life changed that day. You've have handled it with dignity and grace my friend and you continue to amaze me! It felt like we'd never get to sit and watch the kids swim again, but we are!