J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


Monday, March 29, 2010

Purple Day!

Friday was Purple day for Epilepsy awareness.  This is an international event gaining more and more speed every year.  This year my coworkers supported the efforts  and they all donned purple for Epilepsy Awareness.

This Friday was "birthday breakfast" and my department was hosting this month.  We all get together and bake and cook breakfast to honor all thebirthdays in that month.  I got there early to set up, but soon become overwhelmed emotionally and had to duck out for a second.

As more and more faculty and staff took their place in line for the great buffet, I could not believe my eyes.  The lounge was overflowing with purple!

People were even metioning they had heard radios discuss this special "Purple Day."

I am not a huge fan of purple, but to see everyone backing us and showing their support was so, very touching and I could not get enough of that color I once despised.

I think to the majority of the purple wearers, it was simply an excuse to get to wear something other than ther Apollo spirit wear to school with their jeans.  However, it was soo much more to me.  To see soooo many wearing this color was so amazing.  I can not Thank them enough for their great support!  When I announced that our bossman had ok'd the purple wearing instead of our usual Friday spirit wear I was certain we would have a few supporting me, but never almost the entire school.  I am the Special education dept. dept head and I know sometimes when I am chasing teachers down about IEP's, or students needs, of questioning them about TAKS, I am not their favorite person.  So seeing this sea of purple was extra special.

One of my coworkers whom is an avid baker, cupcakes being her speciality, even went as far as to offer to bake purple cupcakes for this special day. Apparently, Mrs. Harper in her endless search for the perfect cupcake, had run across the Great Purple Cupcake project

She made several dozen cupcakes for the day to be sold benefitting the stroll for Epilepsy, Team All 4 Jake,  and the Epilepsy foundation.
Dallas stroll for Epilepsy,
Needless to say I was blown away about the efforts of my fellow Panther's and Mrs. Harper.

Thanks fellow Panthers!  You make each day a little easier!
I am sure proud to be a Panther!

"Love and kindness are never wasted. They always make a difference. They bless the one who receives them, and they bless you, the giver."

1 comment:

Fawn said...

That's so wonderful, Christine! I don't quite understand the part about Panthers (school mascot?) or Apollo, but I'm so glad you got such a great response. That must say something about the message you are spreading and the awareness you are bringing to this disorder. Way to go!

One note: Purple Day is not a national event. It's an INTERNATIONAL event, and in fact it was started by a little Canadian girl. :)