J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


Friday, March 26, 2010

What was that?

I got a great email from Jake's teacher the other day.  I hound those ladies at his school, on a daily basis, to try and keep up with his accomplishments, areas in need of improvement, and for the daily seizure count.  I am certain, they are ready for this school year to be over, so the crazy lady with the ADHD boy can move on to someone elses room!:-)

Mrs. McVay, or Ms. Vay, as Jake calls her, was reporting that Jake was having a great day!  However, she also added some extra details that had me in tears with laughter.

Jake is very spolied, to say the least, by these amazing group of teachers in his class.  During nap time, in order to keep him quiet, and to closely monitor his tc's, Jake's sleep cot is positioned very near these girls.  He LOVES it!  Well, apparently, on this particular day, Jake decided to conjur up some conversation berfore he drifted off.  His conversation went as follows:

"He did tell me as I was sitting there with him trying to get him to go to sleep that I “needed to wear more clothes to cover up my boobies” hahahahahaha! So I covered up with my cardigan and he was like, “I can still seeeee themmmm!!” He was dying laughing. It was pretty funny. "

This statement came on the tails of another similar incident at the grocery store  just a couple days earlier.  Therefore, I was hysterical with laughter.

On Sunday , Jake and I went to the grocery store. As I picked out some flowers in the floral dept., the florist asked Jake if he would like a balloon. He , of course, said yes.  She gave him a bright blue balloon, which he quickly popped.  She then went and got him a new one.  This one, however, was complete with a little clip, to weigh the balloon down, so it wouldn't float away.  The clip could also, obviously be used to clip the balloon onto his clothes so he won't have to mess with hit.  The florist then proceeded to clip the balloon on Jake's jean pocket.

Before I have a chance to take my precious son, by the hand and turn to leave, he turns to her and asks:

"Can I clip it on my penis?"

I almost asked him "what was that?" as I was certain my little angel did not just say that, but then it clicked...yes he did.  I am not sure I have ever moved so fast away from one particular scenerio in my life.

Where does he come up with this stuff?

"Kids say the darndest things!"

1 comment:

Mandi said...

yeah right! i actually don't know what i'm going to do with myself when i don't see him every day!!!!

love the post! hahahaha