We are out of the hospital!
Matt was with Jake , as he was admitted Wednesday for the BIG steroid treatment. While it was absolutely killing me, being away from him and not being able to be the one to interrogate the doctor and nurses with questions, I needed to stay at work for in the infamous TAKS test.
I arrived Thursday morning with Addison. We relieved Daddy of his duties. Addison also met and talked with the child life specialist. She has been a having a tremendously difficult time watching Jake continuously seize and be shuttled to and from appointments and hospitals.
The meeting , along with weekly counseling sessions at school, have had a very positive effect on her. She still gets very weepy and sad watching Jake and his everyday struggles, but also understands it a bit more now.
It is so heartbreaking watching both my babies struggle so much emotionally and physically. I want to just yank It from both of them and protect them from all of this.
As we arrived Thursday morning, I was disappointed to learn that Dr. H had already met with Matt, therefore I probably wouldn't be able to bombard him with questions!
Matt however reported that Jake's last seizure was the previous night. That was great news.
Dr. H ended up coming back around Thursday evening and informed me that Jake was doing great! Not only did he look a lot better, so did his eeg!
It turns out by the time we left Saturday morning, Dr. H used the words 'normal" and eeg in the same sentence!! This has not happened in at least 18 months!
You can only imagine our elation right now! I realize things could make a turn for the worse, as they did August 2008, but for now I am praising God!
Not only does his eeg, look very much improved, but so does Jake.
He is definitely swollen from the treatment already, however he is doing so well!
His mind and his conversations seem so real, normal, and clear. I find myself just staring at him while he talks, wondering how things can turn upside down so quickly.
He laughs, he remembers, he jokes, he speaks so clearly the past two days. I am beside myself with glee! I have said it before, but I guess I didn't realize how much he could truly improve. Even his drooling and his gait appear so much better to me!
I honestly can't quit staring at the kid and waiting to hear what comes out of his pretty, little mouth next.
I am , however, cautiously optimistic. We will take one day at a time, but for now we will live and love in this moment! Because here in this moment, with my family all in own house, and healthy for now, I am elated and could absolutely not ask for anything more. I have all I have ever wanted! I could not ask for more!
"I remember my affliction and my wandering, the bitterness and the gall. I well remember them, and my soul is downcast within me. Yet this I call to mind and therefore I have hope: Because of the Lord's great love we are not consumed, for his compassions never fail." ~Lamentations 3:19-21
My day with the Pioneer Woman
11 hours ago