Nada, zip, nilch
My sister in law and I had planned a big party with bounce house, cake, water guns , the works for this weekend ,as her twins, my niece and nephew, Jake's cousins, are a year to the day older than Jake.
However, I kind of backed out on that a couple weeks ago , as Jake's seizures started getting worse.
Besides the fact, Jake would be in a constant seizure, my stress level would be through the roof trying to chase him around the backyard, keeping him away from the pool and off the concrete.
Jake is not able to climb.
The fun at the party includes, jungle gyms, forts, and a bounce house you climb and slide down.
Jake has increased seizures when over heated.
The party was to take place at 3:00 in the afternoon with an expected high of 90.
Jake's seizures are also associated with sleep of lack of sleep.
3:00 is when he usually sacks out for his second nap.
So now I am left with a birthday boy, who has been locked in a hospital for a week, and no plans for his party.
Suggestions are welcome for this awful mommy who has had no time to think about how to make this day extra special for her little boy.
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future."
Jeremiah 29:11
God Bless~ Christine
P.S. in all of this I always have said "It's worse for us than it is Jake, He thinks he has always been like this." This morning upon waking he states to me "I climbed at Disney World, I am going to tell that doctor I can climb!"
We went to Disney World slightly over a year ago and apparently Jake does remember not having the restrictions he has now. As heartbreaking as this statement was, it was also soo encouraging that he does remember and that his level of cognitive thinking is still there!
2 comments:
Doing your best to protect Jake from seizures and their inevitable injury risk is a great birthday gift. Not all birthdays will be constrained like this. We've found that Playmobil toys are good for little boys confined to a bed or couch. It provides a good imaginative manipulative toy for them to play with. God bless!
Darn you make me cry! I'm still hopeful that we can have a nice dinner and blow out some candles. It's has been heartbreaking this week getting it ready without having Jakers involved. And don't forget you are the best mom ever the way you fight for your child and the way you touch and inspire others! Jake is blessed that you are his mommy!
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