We have now made the tradition of taking our new family.
Addison, Jake, Matt and I usually head over with a picnic dinner and save many spots while we wait for friends and family to join us. It is always a great time and through the years our "camp site" is ever expanding.
Then August 1st happened of last year. Many things have changed since then. One of them being the limits we are willing to push Jake to.
The Texas heat is well above 100 lately. Heat is a trigger for Jake.
Jake has been going to bed around 7:30 or 8:00, right after he has his medicines.
Fireworks don't start until 9:30.
Matt I and thought it was in Jake's best interest to sit this year out of the Kaboom Town festivities.
Papa came and got Addison so she wouldn't have to miss the wonders in the sky. They arranged to meet up with the usual crowd that greets us there and Papa would deliver her back afterwards.
Meanwhile, Matt and I hit the fireworks stand for Jakers. He knew it was that time of year to honor our soldiers fighting for our freedom, parades, swimming, food and fireworks.
We loaded Jake up with "poppers", food, and fun.
And just as expected, the kid hit the hay before 8:00.
Although, this year was a change, change is not always bad. Jake had a great time with us and we felt much less anxiety than we would have, having him push his limits in the Texas heat and long night.
We surely would have loved to have Addi with us as well, but are very fortunate to be blessed with a close knit group of family of friends that also take into consideration her need for normalcy.
Here are some pictures of our much fun filled July 4th weekend.
I do wish things could have been different and more like they were last year.
However viewing these pictures today and staring at the screen expecting the blue helmet to be back on his head, I am Thankful.
I am thankful that blue helmet is tucked away inside his closet, at least for now.
I am so thankful for how far we have come.
I am so thankful for our support system.
And I am so thankful for the many "good things" that this beast has brought us!
It has brought us an understanding, a thankfulness for each day, and a MUCH better appreciation of what is important in day to day life!
"If you concentrate on finding whatever is good in every situation, you will discover that your life will suddenly be filled with gratitude, a feeling that nurtures the soul."~ Rabbi Harold Kushner ~
God Bless~ Christine
By the way don't forget about Erin Leyden at the AllStar game tonight!