J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


Sunday, July 26, 2009

soo annoyed?

I had no other title for this, other than I bet you are all so annoyed that the previous titles have to do with a year ago.

this one does too.

Sooo...a year ago today my sister in law and I , took my mother out for her birthday to see Mama Mia and then to Neiman's for their awesome food, specifically their popovers! yummo!. While there we saw an amazing woman that I shared a classroom with my first year of teaching, have come to be great friends with and even randomly saw her at a friends funeral the the other day. I think Melissa was placed in my world for a reason. I am not quite sure yet exactly why, other than her being an amazing person, but the way I run into her in random parts of my life and met her is astounding!

Her and her husband write amazing books by the way. I give them for most baby and wedding showers...check them out!
(I apologize for putting the amazon site up, but thats I really all I know how to do. you will not be disappointed if you buy these books either!)

Anyway, so we go see mama mia, have an awesome meal at neimans.
I go out to my car and notice a flat tire. Not the kind of flat like I can drive, but really flat, like I need help pronto!

is this a sign?

So I rescue Matt from the twerps, as I believe, he had a golf date, and my wonderful father goes with me to fix the car, as my mom watches Addi and Jake.

All this time, I am feeling uneasy.

Besides the fact I never get flat tires, and Jake has had weird "episodes" the past few days...I feel a "storm coming on." I don't know how to explain it, but I really did.

We got the car fixed. Picked up the kids and went back home.
I tell Matt, please rock Jake and let me know if you see anything strange.
He rocks , maybe 2 minutes and I hear "Christine, come here!"

"yes?" while running into Jake's "cowboy room."

"he did it!"

"he did what?"

"what are you talking about"

"he totally straightened up, was stiff and shook"

This was only a few seconds, but completely foreshadowed our life to come in the next week or two, if not the next year.

Wait on the LORD: be of good courage, and he shall strengthen thine heart: wait, I say, on the LORD.(Psalm 27:14)

God Bless~ Christine

There really is a reason for the car story, Melissa and Mama Mia.....more to come;)

1 comment:

Leslie said...

I can remember the week Jake started having seizures too...it wasn't like I thought much of it, other than get him to the doctor. He has come so far in this year and while I know you would wipe away everything if you could, he is getting better and maybe sooner than you think. You and Jake have brought on awareness to so many and I have seen you grow leaps and bounds in your faith! (Not that you weren't like that before, but never expressed it so openly. :) ) Love you!