J a k e

J a k e
at the beach in Destin

Jake's story

July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.

Then July 22, 2008 came....

Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....

Here begins our journey......

...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.

Jake's mom, Christine


Wednesday, July 22, 2009

a year ago..

today, is the day I noticed Jake's first seizure. Hindsight, I believe he had some before this day, but today was the first time I saw one staring me right in the eyes.

I took the kids to Costco, to find some retreat from the Texas summer heat. We did this about once a week. Most of the time we would not even buy anything, just take in the awesome things they had to offer and maybe even snack on all the samples for lunch.

Jake and Addison had just received an orange smoothie sample. We then made our way to the book aisle so the twerps could look at all the wonderful reads out there.

Right as we pulled next to the first selection, it happened.

Jake's arms flew back and his smoothie went flying.

It was certainly a brief second in time. A brief second that would transform the way we live and most certainly the way we interpret life.

My first instinct was to get angry at Jake for flinging his smoothie and almost hitting the pristine books waiting to be purchased.

Then I saw the look in his eyes.

I interrogated him for awhile.

I asked him "what happened?"

"Jake, did you do that on purpose?"

"why would you do that, that's naughty."

The kid was dumbfounded and his eyes told me the truth.

He had no clue what had just happened!

I quickly took the kids home and didn't tell anyone what happened, not even Matt. I dismissed it as nothing.

Nothing, however that "nothing" set a bad taste in my mouth for Costco and I believe it was not until maybe 3 months ago that I got the courage up to set foot back in that mega supermarket!

Hindsight, i think there was another incident a couple days earlier.

I was at Lifetime, getting my workout on with Abrea and Ms. Sarah. Then it came.

The dreaded teenager entered the studio. Dreaded, because everyone in the room knew somet unexpecting parent was going to have to cut their workout short, as their child either needed a diaper change, is crying, or got hurt.

It had been almost 2 years since I was the victim of the "call" and had to make the trip down the stairs to pick up my child, so I was smiling to myself waiting to see the poor soul who had to miss burning those extra calories.

Here she came...headed straight to me!
NOOOO... I only need about 15 more minutes!

I get down to the childcare center and there is Jake full of blood.
I ask another teen, what could have happened and I saw it.

That teens eyes were as big as saucers. Just like I would see in Jake a couple days later.

It did not hit me until mid September or November that this incident was most likely a drop seizure.

I will never forget the look in that lads eyes. The same exact look Jake gave me in Costco.

I still have yet to be back to the gym.

The Lord is my rock, and my fortress, and my deliverer; my God, my strength, in whom I will trust; my buckler, and the horn of my salvation, and my high tower. (Psalm 18:1)

God Bless~ Christine

1 comment:

Brandy said...

Again, i gain clarity and perspective as I sit here so annoyed and "mad" at Ian for his tantrum in the park. How stupid of me. I have adult tantrum's, why am I freaking out about his? Such a minor moment in the grand scheme of things...I am going to go hug Ian and explain to him that maybe he didn't understand what I was doing and that I understand his frustration. thanks. love you and look how far you all have come...can't believe it's been a year. You did it and will continue to persevere.