After a memorial surface for the poor Crab he went home to the big guy in the sky via a Walmart bag and a green city trash can.RIP Slugbug...You will be missed.
We have had a fun and eventful week and I will save the best for last. Addison went with Papa to see Annie the ballet. She loves going to see musicals, plays and ballets. She probably even more enjoys the time with Papa, as the world is hers when they are together. She can do no wrong in his eyes and can get whatever her heart desires..well most of the time. It is Matt and I who have to "pay" for several hours or even days after an outing with Papa, or any Grandparent rather. She can conquer the world when she is with them!
Granny and Poppy sent Addison and Jake some Western attire for Addison's Western day at school. Addison LOVED her get up. Jake was impressed with his as well, but chose to be the naked cowboy.
Jake went shopping for a New big boy bed, yet again. It seems the infinite search for the perfect bed, at the perfect price that will last us as long as this child is living in our house, is near impossible. However, we finally decided on one at The Cat and The Fiddle that is pretty cool. It is not the price we would have liked to pay, but I guess beauty comes with a price...right? Waiting the 6-8 weeks for delivery could be excruiating. The child no longer sleeps in his bed. He begs for us to make him a bed on his floor, or ventures to our room in the early morning hours. This could be the longest 6-8 weeks we have known.
New Beginnings?
Jake has had.....drum roll....... no more than...drum roll......3 seizures since Friday!! Of course these are ones that we have seen. He could have had more, but we saw no more than three! Friday we only logged a couple, however he had weird behavior, that I am really unsure about. Therefore, I will not count Friday. Today he had his first seizure free day at school!!!
I praise God for the small things. I find myself feeling giddy inside and bearing a "perma-grin!" I look back and can't believe, truly, how many seizures he was having a day...as little as a week ago ...we were having more than 15!! To have 3, or less, all weekend I am beside myself!
“Nothing has turned out as we expected! It never does. Life's under no obligation to give us what we expect. We take what we get and are thankful it's no worse than it is.”
God Bless~Christine
1 comment:
Congratulations! I know what it's like to have a seizure free day or almost seizure free day. When you don't have seizure control it is like a big tyrant is living in your house ordering everyone around. I will pray for Jake. Be steadfast and persevering! -Reid McKinley
(ncmckinleys.blogspot.com)
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