Jake's story
July 21st was a normal day, as were the days of summer before. Everything was in it's place. School days were approaching and the family was enjoying the last days by the pool, ignored bedtimes and high popsicle counts.
Then July 22, 2008 came....
Jake had his first seizure. I did not recognize it as such. It was not until he had several more of these "little jerks" and bloody noses that I thought this could be seizure activity. We were scheduled to see a neurologist on August 4th, after going through our pediatrician, however we didn't make it that far. I was awakened August 1st, by Jake in a full seizure (6 minutes long)...he started to turn blue so I called 911....
Here begins our journey......
...we were taken by ambulance to the hospital. Checked in. Released. 3 more grand mal seizures after being released. Checked back in. Sent home 3 days later. Another grand mal, this one lasting a whopping 11 minutes and taken by ambulance again. Stayed at Childrens Dallas for a week. Upping meds, changing meds and mixing meds.
Diagnosis: Epilepsy
Cause: Unknown
We have now found, through some absolutely amazing family and extended family, whom I will NEVER be able to thank enough, the wonderful doctors and nurses at Cook Childrens Hospital in Fort Worth, who are continuing to help us through this. We have had another grand last thursday, and are averaging anywhere from 5-30 seizures (jerks, drops, stares) a day. I was to begin back teaching at Apollo, but am having to put that on hold until the seizures are controlled. Jake is not able to go back to school until he is 30 days seizure free. We are still waiting for that ONE day. Please pray for our family and for little Jake. Although this is not the end of the world, it is a huge hurdle we WILL overcome. Pray for courage for Jake, understanding as parents, good doctors and for the right medicines.
Jake's mom, Christine
*********************************************************
As I am sitting here finishing up email and "catching up." My daughter walks in after being in bed for at least 45 minutes and says:
"Mommy, do you know Natzi's are really bad people?"
Yes, I am aware of that....but geez, what in the world could have caused a 5year old to contemplate The Natzi's?
It makes me really realize how much kids soak up in our daily lives. The little things we may mention in passing, laugh at on tv, or even sing in a song. These words that "oh so knowledgable" adults, speak to children, are sucked up and forever embedded in their heads.
Our children our sponges. Now is our time to mold and make these sponges into the amazing people they are destined to be!
~ Children are like wet cement. Whatever falls on them makes an impression. ~
God Bless~ Christine
No comments:
Post a Comment