We were beginning to lose our little man again,much like the many blogs that started this site. He was having a difficult time forming sentences, having motor control, and with loss of strength. Our little guy was leaving us, so we pulled the plug.
Was it the diet? Who knows, but we needed to decrease our variables in Jake's life, to fine tune our knowledge of what may trigger seizures ans cause adverse effects.
We are still weaning on to a new drug and off of a drug, he may have had a fever that week, I went back to work, after staying with him for 2 weeks straight, and we started the diet. We were really unsure what was causing Jake to disappear again, so we chose to remove at least one variable, the diet, and see what happened.
The first day after starting Jake on a normal diet again, he joined us! He was back! We were still having many seizures a day, but his personality and spirit were once again with us.
We will indeed retry the diet if need be, however we want to wait until we are completely weaned on to this new medicine.
Blood was embedded in the diamonds in my ring, in the groves of my fingers, the cuticles of my nails, and was still oozing out of Jake's mouth. This was after the frantic "clean up."
"Every thing's fine!":-)
We probably could have hit the er after this incident, as his frenum was completely torn, there was a huge gap, and another added slice, from the New Years Day massacre. However, I am not sedating my baby for cuts that will heal on their own, but just take longer to do so.
"Laughter and tears are both responses to frustration and exhaustion . . . . I myself prefer to laugh, since there is less cleaning up to do afterward." [Kurt Vonnegut, Jr.]
God Bless~ Christine