Mission aborted and more

Many have been wondering how the diet has been going. The diet is not going. We aborted this mission after a week, less 4 pounds, lethargy, dehydration, increased seizures and fevers.

We were beginning to lose our little man again,much like the many blogs that started this site. He was having a difficult time forming sentences, having motor control, and with loss of strength. Our little guy was leaving us, so we pulled the plug.

Was it the diet? Who knows, but we needed to decrease our variables in Jake's life, to fine tune our knowledge of what may trigger seizures ans cause adverse effects.

We are still weaning on to a new drug and off of a drug, he may have had a fever that week, I went back to work, after staying with him for 2 weeks straight, and we started the diet. We were really unsure what was causing Jake to disappear again, so we chose to remove at least one variable, the diet, and see what happened.

The first day after starting Jake on a normal diet again, he joined us! He was back! We were still having many seizures a day, but his personality and spirit were once again with us.

We will indeed retry the diet if need be, however we want to wait until we are completely weaned on to this new medicine.

and More (the comedy)

My sister in law finally "got it", I think. We were visting her early last week and we had an incident that i think made her appreciate the comedy, that is the Peters household.

Lisa and I were sitting at her kitchen table, as the kids played. Jake walked passed me to go to the playroom. I followed for some reason. Maybe to watch him, maybe to go to the potty, who knows, but I followed. I am 2 steps behind Jake when he....(all together now)...."bites it" and hits the linoleum floor. Jake and I are now about 10 feet from Lisa, but around a corner. Because there are 5 other kids in the house, I try to nonchalantly, let Lisa know I may need a little assistance. I calmly announce to her, "Jake fell, it doesn't look good."

No response.

me: "Yeah, this is not pretty, help?!"

no response

me (over Jake's wailing): "it's dripping, it's dripping.

By now blood has drenched my socks, the floor, Jake's shirt, and is pooling in my hand that is cradling Jake's mouth area.

me: "Hello? "It's dripping, it's dripping!"

now I See this hand creep around the corner with a wad full of paper towels.

Phew, Now I can assess the damage and cleanup a little bit of ourselves before tending to the floor.

Lisa is still unresponsive, but hands me more wads of paper towels!

Apparently blood freaks her out. Welcome to the Peter's family.

About this time Matt calls.

I am sitting at the table with Lisa, on the phone with Matt.

I proceed to tell him, over Jake's wails, all is well. Matt continues to ask Jake to quit crying. At this moment I rip the phone from Jake's ear, as Matt can't see the cause of the crying and I didn't want to upset either of them more.

Right about this moment, as I hung up the phone, Lisa snapped a photo of "the scene." The humor, to her, was that I was reassuring Matt that everything was hunky -doory and she was witnessing something quite the contrary.

Blood was embedded in the diamonds in my ring, in the groves of my fingers, the cuticles of my nails, and was still oozing out of Jake's mouth. This was after the frantic "clean up."

"Every thing's fine!":-)

We probably could have hit the er after this incident, as his frenum was completely torn, there was a huge gap, and another added slice, from the New Years Day massacre. However, I am not sedating my baby for cuts that will heal on their own, but just take longer to do so.

"Laughter and tears are both responses to frustration and exhaustion . . . . I myself prefer to laugh, since there is less cleaning up to do afterward." [Kurt Vonnegut, Jr.]

God Bless~ Christine